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A mixed-methods, theory-driven assessment of the sustainability of a multi-sectoral preventive intervention for South Asian Americans at risk for cardiovascular disease
Implementation Science Communications volume 5, Article number: 89 (2024)
Abstract
Background
South Asian Americans bear a high burden of atherosclerotic cardiovascular disease (ASCVD), but little is known about the sustainability of evidence-based interventions (EBI) to prevent ASCVD in this population. Using community-based participatory research, we previously developed and implemented the South Asian Healthy Lifestyle Intervention (SAHELI), a culturally-adapted EBI targeting diet, physical activity, and stress management. In this study, we use the Integrated Sustainability Framework to investigate multisectoral partners’ perceptions of organizational factors influencing SAHELI sustainability and strategies for ensuring sustainability.
Methods
From 2022 to 2023, we conducted a mixed-methods study (quant- > QUAL) with 17 SAHELI partners in the Chicago area. Partners’ settings included: community organization, school district, public health department, and healthcare system. Descriptive statistics summarized quantitative results. Two coders used a hybrid thematic analysis approach to identify qualitative themes. Qualitative and quantitative data were integrated and analyzed using mixed methods.
Results
Surveys (score range 1–5: higher scores indicate facilitators; lower scores indicate barriers) indicated SAHELI sustainability facilitators to be its “responsiveness to community values and needs” (mean = 4.9). Barriers were “financial support” (mean = 3.5), “infrastructure/capacity to support sustainment” (mean = 4.2), and “implementation leadership” (mean = 4.3). Qualitative findings confirmed quantitative findings that SAHELI provided culturally-tailored cardiovascular health education responsive to the needs of the South Asian American community, increased attention to health issues, and transformed perceptions of research among community members. Qualitative findings expanded upon quantitative findings, showing that the organizational fit of SAHELI was a facilitator to sustainability while competing priorities were barriers for partners from the public health department and health system. Partners from the public health department and health system discussed challenges in offering culturally-tailored programming exclusively for one targeted population. Sustainability strategies envisioned by partners included: transitioning SAHELI to a program delivered by community members; integrating components of SAHELI into other programs; and expanding SAHELI to other populations. Modifications made to SAHELI (i.e., virtual instead of in-person delivery) had both positive and negative implications for sustainability.
Discussion
This study identifies common sustainability barriers and facilitators across different sectors, as well as those specific to certain settings. Aligning health equity interventions with community needs and values, organizational activities, and local context and resources is critical for sustainability. Challenges also arise from balancing the needs of specific populations against providing programming for broader audiences.
Background
People of South Asian background (i.e., those with historical or ancestral connections to Bangladesh, Bhutan, India, Nepal, Pakistan, Sri Lanka, and the Maldives) represent a fast-growing population in the U.S., numbering more than 5.7 million as of 2020 [1]. South Asian Americans also carry an elevated burden of atherosclerotic cardiovascular disease (ASCVD), evidenced by higher ASCVD hospitalization and mortality rates as well as higher burden of ASCVD risk factors (e.g., type 2 diabetes mellitus, hypertension, hyperlipidemia, and truncal obesity) when compared to non-Hispanic White and/or other Asian American populations [2,3,4,5,6,7]. The U.S. Preventive Services Task Force recommends intensive lifestyle (e.g., diet and physical activity) evidence-based interventions (EBIs) for ASCVD prevention in at-risk populations [8]. However, our prior research shows that existing EBIs fail to reach South Asian Americans due to a lack of alignment with their sociocultural patterns and values [9,10,11,12]. Growing evidence continues to demonstrate the pressing need for culturally-adapted diet and/or physical activity interventions for South Asian Americans that are rooted in community engagement and incorporate migration context, cultural norms, beliefs, and language [13,14,15,16,17,18]. While emerging literature has focused on developing, implementing, and testing such culturally-adapted EBIs [15,16,17,18], important gaps remain regarding the determinants of or strategies to sustain the EBIs beyond their original implementation.
Sustainability of EBIs for populations experiencing health disparities is a critical issue. Unsustainable or discontinued EBIs can further widen disparities in health outcomes across settings and subgroups, bring disillusionment and reinforce mistrust in underserved communities, and threaten the mission of health equity [19]. We acknowledge that there is no unanimous agreement on a single definition of EBI sustainability [20]. Rather, evolving literature provides conceptual guidance on this multidimensional concept [21]. Scheirer and Dearing outlined six aspects of EBI sustainability: 1) continuing benefits for clients; 2) continuing original program activities; 3) maintaining community-level partnerships developed during implementation; 4) maintaining new organizational practices started during implementation; 5) sustaining attention to the issue; and 6) diffusing the EBI to other sites [22]. Some researchers differentiate between sustainability and sustainment [23,24,25], though their definitions also vary. Chambers and colleagues described sustainability as the extent to which an EBI can deliver its intended benefits over an extended period of time after external support is terminated, while sustainment is continued use of an EBI within practice [24]. In contrast, Birken and colleagues conceptualized sustainment as continuous use of EBIs as intended, over time, in ongoing operations with dynamic adaptation, while sustainability centers characteristics that enhance sustainment [25]. Following Shelton and colleagues, in this study, we use the term sustainability to refer to both several desired aspects identified by Scheirer and Dearing [22] (e.g., continuation of benefits and activities, maintenance of partnerships and organizational practices, sustained attention, and EBI diffusion) as well as the characteristics that increase the likelihood of maintaining these aspects [26].
Sustaining EBIs requires meaningful engagement of key partners with a direct interest or involvement in EBI implementation [19, 27, 28]. Furthermore, key partner engagement should not be confined to a single sector but instead extended to multiple different sectors [29, 30]. This recognition aligns with recent research agendas in implementation science that call for investigating determinants of sustainability with a focus on different settings and contexts [31, 32]. For example, the Integrated Sustainability Framework outlines the emerging multilevel factors that may influence sustainability depending on the setting (e.g., community, school, clinical, or public health sectors) [31, 33]. These understandings are important because what constitutes barriers and facilitators in one setting may not necessarily apply in other settings.
Our study, the South Asian Healthy Lifestyle Intervention (SAHELI), provides an ideal opportunity to contribute to the emerging literature on EBI sustainability in multisectoral settings to promote health equity. SAHELI was a culturally-adapted EBI targeting diet, physical activity, and stress management for South Asian Americans at risk for ASCVD. SAHELI was conducted with a community-based participatory research framework, where the study partners used a collaborative structure to plan and implement SAHELI, engage and retain South Asian American research participants, increase awareness about ASCVD disparities in South Asian Americans, and disseminate results to partners and community members. Partnering organizations included a community organization, a school district, a public health department, and a health system. The purpose of this study is to explore multisectoral partners’ perceptions of organizational factors influencing SAHELI sustainability and strategies for ensuring SAHELI sustainability.
Methods
Study design and setting
Details about the design of the SAHELI intervention have been published elsewhere [13]. A manuscript with primary outcome results has been recently published [34]. To briefly summarize, the study was a type 1 effectiveness-implementation hybrid randomized control trial [35] aimed at reducing ASCVD risk in South Asian Americans. In the trial, 549 participants in the Chicago metropolitan area were randomized to receive either printed healthy lifestyle education materials or SAHELI, a group-based lifestyle change program that includes weekly classes for 16 weeks and 4 booster classes through month 11. The trial adapted content and materials from the U.S. Diabetes Prevention Program (DPP) [36], the National Heart, Lung, and Blood Institute [37], and the PREMIER trial [38]. The core curriculum (months 1–4) included 16 intervention contacts (1 individual counseling session and 15 weekly group meetings). The trial began in March 2018 and the last follow-up assessment was completed in February 2023. Weekly classes were delivered at community partner sites prior to the COVID-19 pandemic. With the onset of the pandemic, treatment and assessment procedures were modified for telephone and video administration. Remote intervention delivery began on March 14, 2020.
Our present study is an explanatory sequential mixed-methods study (quant- > QUAL; capitalization depicts the primary component that is dominant) [39, 40] conducted with a sample of 17 survey participants and 9 interview participants who were key organizational partners, study implementers, and university research team members of the SAHELI intervention. In January 2022, 17 participants (29% from the community organization, 18% school district, 6% public health department, 12% health system, 18% project implementers, and 18% university research team members) completed a web-based survey, hosted by REDCap [41, 42] to quantitatively assess domains related to SAHELI sustainability. Between August 2022 and March 2023, 9 participants (purposively selected as a subset of the 17 survey participants) who were deeply involved in project implementation and/or were organizational leaders further completed semi-structured interviews to elaborate on their perspectives on SAHELI sustainability. Appendices A and B provide 1) a description of partner organizations and 2) the experience and involvement in SAHELI of survey and interview participants. The Northwestern University Institutional Review Board approved this study (STU00204939).
Data collection and measures
Quantitative survey
We adapted two previously-developed instruments: the Sustainment Measurement System Scale (SMSS) [23] and the Program Assessment Sustainability Tool (PSAT) [20]. The original SMSS [23] has a total of 35 items and 8 subscales; it focuses on the determinants and outcomes of sustainment of prevention programs. In a previous study, the measure demonstrated good reliability and convergent and discriminant validity in assessing likelihood of program sustainment [23]. In addition to the 8 subscales from the SMSS, our survey included 2 subscales (Program Adaptation and Communications) from the PSAT [20]. The original PSAT has 40 items and 8 subscales; it was designed to measure capacity for program sustainability of various public health and other programs. The PSAT has demonstrated high reliability when tested with a large and diverse sample over time [43]. The two domains (Program Adaptation and Communications) were added because the SMSS did not capture these constructs. Based on our review of existing literature, we believe these two domains have important implications for sustainability.
Our final survey included 36 items and 10 domains (Appendix C). Examples of items include: “The SAHELI project has sustained funding”; “The SAHELI project is well integrated into the operations of your organization”; “Your organization has a process in place to sustain the project in the event the champion at your organization leaves”; and “The SAHELI project provides strong evidence to the public that the healthy lifestyle program works.” For each statement, participants were instructed to respond using a scale ranging from 1 = little to no extent to 5 = a great extent. Responses of “Not applicable” or “I do not know” were recoded as missing data.
Interview guide
Interview questions (Appendix D) explored organizational barriers to and facilitators of SAHELI sustainability, what sustainability means in the context of routinely-delivered programs, and planning and strategies for sustainability. The interview guide was developed based on past qualitative research on program sustainability [44] as well as the Integrated Sustainability Framework [31]. Examples of questions included: “For your organization, what are the barriers to sustaining the SAHELI programs once the funding ends?”; “What would your organization need to be able to sustain SAHELI?”; and “What organizational and community assets can be leveraged to keep SAHELI going into the future?”.
Data analysis
All statistical analyses were conducted in R version 4.1 [45]. For each domain, a summed score for all statements was calculated and then divided by the number of non-missing statements to obtain a domain score. Means, standard deviations, medians, and ranges of scores were reported.
All interviews were recorded and transcribed verbatim. MAXQDA 2022 was used for all data analysis and management. We used a hybrid approach of qualitative thematic analysis, which incorporated both 1) a deductive a priori template of codes and themes from the survey items and the Integrated Sustainability Framework [31] and 2) a data-driven inductive approach [46]. We established qualitative data trustworthiness by: 1) familiarizing ourselves with the data; 2) generating initial inductive codes; 3) searching for themes; 4) reviewing themes; 5) defining and naming themes; and 6) producing the report [47]. First, two analysts (MV and SN) independently reviewed three transcripts [48], generated qualitative codes [49,50,51], and created a codebook [49]. Then, using the codebook, one analyst (MV) coded all nine transcripts. The second analyst (SN) reviewed MV’s coding of all nine transcripts. The two analysts held several meetings to discuss results and resolve any discrepancies. The study team then organized codes into larger thematic categories based on conceptual similarities and a priori research questions. We summarized findings and identified illustrative quotes for each theme.
Mixed methods integration occurred through the design [52] that connected the survey and interview samples. We analyzed the quantitative and qualitative data to identify areas of confirmation (i.e., findings from both types of data reinforced the results of each other) or expansion (i.e., findings from each dataset expanded insights or addressed complementary aspects) [40]. While we also analyzed data for areas of discordance (i.e., findings from each dataset contradicted each other) [40], we did not identify such instances. Further integration occurred through a weaving narrative (e.g., explaining both qualitative and quantitative findings together on a concept-by-concept basis) and the use of a joint display [40]. In particular, qualitative and quantitative findings are presented together in a joint display with meta-inferences [40, 53] guided by the Integrated Sustainability Framework [31].
Results
Quantitative findings
Table 1 displays the description and summary score for each of the 10 survey domains, with a higher mean score indicating greater perceived positive impact of this domain on SAHELI sustainability. The domains with the highest mean scores are global sustainment indicators, responsiveness to community needs, and responsiveness to community values (M = 4.9 for all 3). Following these, in order of mean scores, are program adaptation (M = 4.8), monitoring, evaluation, and program outcomes (M = 4.7), coalitions, partnerships, and networks (M = 4.6), and communications with partners and the publics (M = 4.6). The domains with the lowest mean scores are funding and financial support (M = 3.6), infrastructure and capacity to support sustainment (M = 4.3), and implementation leadership (M = 4.3). There was also greater variability in responses in these 3 domains (evidenced by higher SD).
Qualitative findings
Figure 1 summarizes SAHELI sustainability facilitators and barriers by setting. Emergent themes are also described below.
Program characteristics
Facilitators: Perceived benefit, need, and fit with the South Asian American population
Participants underscored how SAHELI responded to a critical gap by offering culturally-adapted ASCVD education in the South Asian American community and, relatedly, was a strong fit with target populations. These factors were highlighted as sustainability facilitators. A participant spoke about their motivation to adopt SAHELI because of the high burden of ASCVD among their South Asian American clients and the perceived benefits of SAHELI to promote healthy lifestyle changes and reduce diseases: “[SAHELI provides] really powerful data around medical research and South Asian representation… The higher incidence of heart disease in South Asians that, with proper and early intervention, could be changed also resonated with us… We have a significant South Asian [client] population. Thinking about their wellbeing was compelling to partner with SAHELI” (#08, school district).
Participants highlighted how SAHELI aligned with the South Asian American community’s sociocultural and language needs and preferences (e.g., relevant cooking techniques and physical activity). One participant said: “The South Asian cultural way… we fry food and eat foods with high saturated and trans fats… SAHELI offered cooking techniques, including steam and pressure cooking, with minimal oil that helped with diet. We also had an education session on eating heart-healthy diets…This curriculum was just perfect… All components of SAHELI were culturally tailored” (#05, project implementer). Another described: “[SAHELI] exercises were conducted by South Asian fitness instructors, and the music that was used was Bollywood songs so that people could relate to the music… I feel SAHELI was a very integrated and tailored South Asian program” (#12, project implementer).
Participants described how SAHELI increased attention to ASCVD and enhanced positive perceptions of research in the South Asian community, which were integral to its sustainability. A participant said: “SAHELI has become a movement… it's brought about an empowerment where you take ownership of your health, and you realize that this is important for me… It has brought about understanding of research. In our community, research used to be very intimidating. People wouldn't understand research. They would think it's something that's done with numbers in your ivory tower where intellectual people sit and do research. But community-based research where you can be a part of it, this sort of understanding… I think is a big achievement” (#04, CBO). Another participant shared a similar perspective: “[The value of SAHELI was] to raise awareness, to also teach that community the value of a study because they did not understand that” (#14, public health department).
Inner contextual factors
Facilitator: Fit with organizational mission, goal, and activities
Across settings, participants discussed the fact that SAHELI was well-aligned with their organizational missions, goals, or current activities and structure. This alignment was a sustainability facilitator as it increased the motivation of partners, made it easier to incorporate SAHELI into the operation of the organization, or facilitated resource mobilization. For example, a participant commented on the fit between SAHELI and the mission and goals of their CBO: “[As] one of the oldest South Asian organizations which has a wide network of clients with health issues, [our organization] was the right fit to become a partner and do the whole project on a great scale… Apart from improving the health of the community, the SAHELI program has also brought awareness about community research in our population, and that is a goal of [our organization]: to educate our people on different aspects of health and research. So that way it was also a good fit” (#04, CBO). Another participant echoed similar sentiments: “[SAHELI] was similar to our overall mission within our health and wellness in empowering our community… There was natural alignment to the work that we are doing related to health, with the specific focus of the South Asian community” (#07, school district).
Moreover, a participant highlighted how SAHELI supplemented their organizational activities by bridging a gap in behavioral change promotion in the health system: “We want to be the most trusted health partner for our communities… One-on-one patient-physician interaction is limited. It is hard for a patient to pick up on all the things they need to do, and it's not the ideal setting for behavioral change… SAHELI is the right type of program for that type of behavioral change that allows for nutrition, exercise, and activity” (#10, health system).
Another participant described how SAHELI fit with the program activities and structure of their school district as well as the district’s emphasis on family and community engagement: “With SAHELI, the capacity of the organization to support and devote resources to it came from [our] community schools’ structure. We already had a neighborhood network. We had a South Asian lead and liaison, and this project matched our goals, which is extremely important. If you just approach any schools that are traditionally staffed, and they don’t have the community structure like we do, it would not have worked. The key is to have a very strong commitment to family and community engagement” (#08, school district).
Barriers: Lack of funding or staff and competing priorities
Across settings, participants acknowledged potential existing resources at their organizations to sustain SAHELI. However, a need for funding and dedicated staff members was identified as a sustainability barrier. Given that partnering organizations provide different programs and services, participants found it difficult to redirect funding and personnel to SAHELI. For example, a participant reported: “We have the physical space, and we have the clients. But what about the equipment?… We need to hire at least one or two specifically for this purpose as well. Funding definitely, is one of the barriers as well” (#04, CBO). Another participant said: “As far as the SAHELI intervention components… there may be some sources to support certain components, but the question always becomes if there is enough funding” (#08, school district). Further emphasizing the issue with staffing, a participant discussed: “There would have to be a dedicated staff member to [SAHELI]. There is no room within our existing staff for someone to take that on to be doing weekly sessions” (#14, public health department).
In addition, participants from the public health department and health system also talked about competing organizational priorities as a sustainability barrier. A participant mentioned: “With workforce shortages in health care, it gets even more tricky… [SAHELI sustainability] may not bubble up to the top” (#10, health system). Another participant said: “We're not out of pandemic mode yet… Going back to the staff that would be involved that we have pre-pandemic, while still operating in pandemic mode, and adding on additional programs is difficult” (#14, public health department).
Outer contextual factors
Facilitator: Networks within the South Asian American population and interorganizational linkages
Participants from the CBO and public health department identified their networks within the South Asian American community as well as interorganizational linkages as sustainability facilitators. A participant discussed their extensive reach with South Asian American community members: “We are very strong in marketing and our networking. We have a huge network of clients. We have adult daycare and home care programs, and we have about 3,000 clients in both programs. We also have 2,500 homecare workers… We also have a strong network of about 10,000 donors in the community, and we reached out in an exhaustive way to all of them with the SAHELI program over the five years” (#04, CBO).
Interorganizational linkages allowed program partners to broaden the resources that could support SAHELI sustainability. A participant described how partnerships were an effective platform to further amplify SAHELI and reach a larger population: “We partnered with [the village] family services, public libraries, and parks to organize and promote SAHELI. We partnered with some restaurants and grocery stores. We also partnered with [the public health department] and [the health system]. We also worked with [another organization] and promoted SAHELI at the huge picnic they had. In the summer, we promoted it at festivals” (#05, project implementer). A participant from the public health department discussed the value of their interorganizational linkages for SAHELI sustainability: “We helped partner with our local legislator… to promote [SAHELI]… That’s because of… the Health Department name, and being an integral part of the community… Our name helped open doors where they may not have been able to get in as easily” (#14, health department).
Barrier: Challenge of programming selectively for the South Asian American community without including other populations
Participants from the public health department and health system acknowledged that a sustainability barrier would be to continue offering SAHELI exclusively for the South Asian American community. A participant mentioned the challenge of balancing programs for a specific population that experiences health disparities and demonstrating generalizability of the program to broader populations: “If you offer this for the South Asian American population, people are going to ask why not offer that to other populations that also have high degrees of cardiovascular disease. When setting up a program specific to one high-risk patient population… In terms of sustainability, does the finding generalize to all populations or just to one population? The cultural tailoring is really good if you're trying to target specific audiences. But it's harder to maintain funding for something like that because it's focused on a super narrow population… I understand the need to tailor it, and it's focused to produce better outcomes. But the lack of generalizability makes it tricky” (#10, health system). Another participant echoed similar challenges: “The health department serves the entire community… we can't single out one group over another” (#14, public health department).
Planning and strategies for program sustainability
SAHELI as a program delivered by community members
To sustain SAHELI once NIH funding ends, some participants envisioned transitioning the intervention from being a research-centric, researcher-delivered program to a program managed and delivered by community members. Such a transition would require training community members in implementing SAHELI. A participant shared: “Right now the SAHELI intervention is delivered with the research team. But if it is to be sustainable, it has to be taken over by the community members. One way can be it can be done is by training the community members, so that they can take it forward and keep it sustainable… The research team’s work is done after the study ends. The best way to continue would be to train community members and train interested participants…There are many participants, [for whom SAHELI] was very empowering… They were very empowered to take up more responsibility and become better individuals. They were also interested in learning [to teach SAHELI]… That would be a better way of sustaining the program” (#12, project implementer). Another project implementer was enthusiastic about their role in this transition, saying: “I can help train the members and supervise them. For me, it would be even more meaningful to have a multigenerational impact for the community and I think that would eventually sustain the health education we are providing for them” (#05, project implementer).
Integrating SAHELI within the operations of partner organizations
Some participants from the school district and CBO proposed integrating components of SAHELI into other programs offered by their organizations. A participant from the school district described: “We have a structure of neighborhood networks and affinity groups, there are ways to [integrate SAHELI in] some of the activities of those affinity groups… There is a need to connect and maybe have experts at times [for these activities] … having some of those experts come in who are also aware of the [South Asian] cultural connections… It could be a few classes focused on activities to initiate at home and modeling those activities. Community members can collaborate and provide ideas on how to make it sustainable and fun” (#08, school district). A participant from the CBO proposed leveraging their networks of professionals to sustain health education sessions using SAHELI curriculum: “We have access to a good network of professionals and doctors who work or partner with us on a regular basis… We can get the professional speakers on board even without [the research team’s] help to keep SAHELI going. Regular educational sessions about diabetes and cardiovascular through these resources is not a problem… we can do on our own” (#04, CBO).
Expanding SAHELI to other populations
Some participants discussed expanding SAHELI to include other populations and communities as a sustainability strategy. A participant said: “A SAHELI 2.0… To grow your own and empowering our South Asian community, but then also be able to expand the SAHELI model to other communities within our school district, while culturally tailoring the curriculum and the prevention initiatives. We definitely have sought additional grants to continue funding the program itself, the materials, and the people needed to do it” (#07, school district). A project implementer affiliated with the school district said: “To continue SAHELI… we would want to include more families generally and to the community, with health education or exercise classes” (#09, project implementer).
Impacts of the COVID-19 pandemic
Project implementers reported the adaptation made to SAHELI delivery due to the COVID-19 pandemic and its implications for sustainability. One participant mentioned how virtual delivery increased access for intervention recipients: “Most of the time, participants didn’t want to come because of transportation and time constraints. With Zoom classes, they can save time, stay at home, and continue the group sessions virtually” (#05, project implementer). Meanwhile, another participant acknowledged that virtual delivery did not impact the motivation from the study team but did negatively affect the social connectedness of intervention recipients: “From the team members… everyone seemed highly motivated the entire time. However, patient motivation goes down. If you're just doing it over Zoom and you're not connecting with people, it is the same thing with meetings over Zoom: it's focused on the actual meeting, the small side conversations never occur prior to or after the meeting, so those types of connections were not happening” (#12, project implementers).
Mixed-methods integration of quantitative and qualitative data
Through Table 2, we provide a joint display that integrates mixed-methods results, identifies meta-inferences, and examines implications of findings. Domains are organized based on the Integrated Sustainability Framework [31]. Qualitative findings confirmed quantitative findings regarding program characteristics. In addition, qualitative findings provided expansion of understanding for quantitative results regarding outer factors, inner factors, and planning and strategies for sustainability.
Discussion
Our study queries multisectoral partners’ perspectives on the sustainability of a culturally-adapted lifestyle EBI for South Asian American adults at risk for ASCVD. Using a mixed-methods research design, we identified sustainability barriers and facilitators that were similar across different sectors, as well as those specific to certain settings. Results have important implications for research and practice on sustaining EBIs adapted for populations experiencing health disparities.
Across multisectoral settings and in both qualitative and quantitative findings, SAHELI was seen as highly responsive to the social and cultural factors that impact the South Asian American community’s access to EBIs for ASCVD prevention. Not only did SAHELI focus on health outcomes and behaviors relevant to the community, but it also increased community members’ attention to health issues and positive perceptions of health research. As seen by partners, the sustainability of SAHELI is closely linked with its strong fit and delivery of benefits for South Asians. These results can be attributed to the long history of community engagement embedded in the trial design and implementation. SAHELI was developed based on extensive formative research on South Asian Americans’ explanatory models of coronary heart disease and was adapted from evidence-based cardiovascular and diabetes prevention curricula [54, 55] to incorporate the sociocultural context that influences health behaviors [13, 56, 57]. Moreover, it was implemented through longstanding relationships between the research team and multisectoral partners. Community members actively shaped its curriculum and format [11]. Our findings contribute to the literature on implementation research for populations experiencing health disparities. Implementation science is increasingly prioritizing equity dimensions by calling for designing with implementation in mind, particularly through intervention development with, for, and among underserved communities [26, 58]. Culturally-adapted EBIs that confer benefits are likely to be perceived as valuable and have buy-ins, which can enhance program sustainability [59].
Across sectors, SAHELI was seen as well-aligned with organizational goals or current programs, particularly those with a focus on immigrants, community, family, and health equity. The fit of an innovation within existing organizational mission or procedures, or the ease of the innovation to be embedded within existing services and policies, has been noted as key sustainability facilitators [60, 61]. Organizations are more likely to support continued use and allocate time, staff, and internal resources to projects that they deem suitable and significant [60, 62]. Alignment is also central to integrating program components into established tasks, thereby maintaining program activities to a certain extent even after the original funding period ends [60]. For example, in our study, partners from the school district and CBO described their planned incorporation of SAHELI components into their pre-existing health education programs when research funding ended.
Reported key barriers included a lack of funding and staff and low infrastructure and capacity to support sustainment. This finding likely stems from the complex nature of SAHELI as an NIH-funded research study to evaluate intervention effects on clinical and behavioral outcomes. SAHELI protocols required the use of clinical screening equipment and accelerometers to track physical activity [13], which is resource-intensive and neither feasible nor necessary for all partner organizations to sustain. Furthermore, the current healthcare reimbursement policy landscape does not prioritize prevention programs, and thus the cost of community implementation of lifestyle EBIs for cardiovascular health is often not sustainably covered [63, 64].
Funding and resources have been well-studied as important factors impacting intervention sustainability and scalability [65,66,67]. Long-term program operations can be enhanced by diversifying funding sources [68, 69], including funding from philanthropic foundations, county and state governments, revenue generations, Medicare reimbursement, and individual donors [70, 71]. Early strategic planning is critical as it takes considerable time to identify appropriate funding sources and apply for them [71].
Partners proposed several strategies to enhance SAHELI sustainability, including transitioning SAHELI from being an intensive, researcher-delivered program to a program managed and delivered by community members [64] or integrating elements of SAHELI (e.g., health education classes) into pre-existing programs offered by their organizations [72]. Drawing on the experience of implementing SAHELI, partners also discussed offering lifestyle or cardiovascular health programs for other populations. Moreover, partners described adaptations made due to COVID-19 and their impacts on program delivery. Recent literature has advocated for a dynamic conceptualization of sustainability, suggesting that changes are inevitable and can lead to better EBI fit and impact, instead of the traditional “static” view that resists EBI modifications [24]. Our findings resonate with this perspective. Studies on real-world implementation of DPP have also noted that while the DPP itself is labor- and time-intensive, making changes to the implementation protocol to cater to local context and resources can help bolster its sustainability [73,74,75].
To facilitate adapting complex, resource-intensive interventions to a specific community and context (as opposed to attempting to keep the EBI “as is”), it may be useful to separate the core functions of an EBI (i.e., the basic purposes of the EBI) from the forms (i.e., what may be the strategies to achieve each function) [76, 77]. Additionally, Movsisyan and colleagues have published literature reviews on guidance and practices for adapting population health EBIs to new contexts [78, 79]. Emergent literature also provides tools such as the Framework for Reporting Adaptations and Modifications-Expanded (FRAME), which can be useful in documenting how, when, and why EBIs may be modified [80].
Similar to funding acquisition, program modification can benefit from planning at an early stage [24, 58, 81]. Strategic planning for modification can be done through ongoing monitoring of context and outcomes and fostering effective dialogues with partners [20, 23]. These strategies are also key to program sustainability [20, 23, 61]. In this study, partners gave high quantitative scores for the domains of monitoring, evaluation, and program outcomes, and communications with partners and the public [20, 23]. Throughout project implementation, the research team actively presented interim progress, identified challenges (e.g., during the COVID-19 pandemic), and sought partners’ feedback through regular meetings, which likely contributed to observed outcomes.
Partners from the public health department and health system discussed the challenges associated with offering SAHELI exclusively for South Asian Americans. These partners recognized the benefits of culturally-adapted EBIs to create meaningful impacts and reach a specific population. However, they also faced pressures to ensure their programs appeal to a broader constituency. Partners from these two settings also discussed competing priorities (e.g., health issues or programs that are perceived as more urgent) that are sustainability barriers. These obstacles can undermine culturally-adapted programs to address health disparities in populations from minoritized racial and ethnic backgrounds. Resolving the tension between meeting the needs and experiences of a specific population with health disparities while also offering programming for broader populations [82] is central to advancing health equity. It is critical to recognize that certain populations experience specific challenges or obstacles to participation or uptake of EBIs, and thus culture-specific or adapted programs are warranted [58].
Strengths and limitations
Strengths of our study include the use of theory-driven framework (Integrated Sustainability Framework) [31] and survey measurements (PSAT [20] and SMSS [23]) to assess sustainability. We included partners from diverse settings: CBO, health system, public health department, and school district. We also integrated mixed-methods data at multiple levels [40] by using an explanatory sequential mixed-methods design, merging quantitative and qualitative data for analysis, weaving narrative, and providing a joint display to explain how one data source confirmed or expanded the other [40], which enriches the interpretation and validity of findings. Nevertheless, given the small sample size of organizations and partners, our study may have limitations in terms of the transferability of results to different contexts. While we assessed sustainability perspectives at one point in time, future studies could consider multiple assessments at different points in the implementation process.
Conclusion
Through a mixed-methods design, we analyzed multisectoral barriers and facilitators to the sustainability of a culturally-adapted lifestyle EBI for South Asian American adults at risk for ASCVD. Findings highlight the importance of aligning the design and implementation of health equity interventions with community needs and values as well as organizational activities and goals to ensure sustainability. Successful long-term operation necessitates sufficient funding, capable infrastructure, and adequate staff, which can be challenging for grant-funded prevention interventions. Context-specific program modification through communication across sectors can also ensure sustainability.
Availability of data and materials
The datasets used and/or analysed during the current study are available from the corresponding author on reasonable request and with the approval of the Northwestern University Institutional Review Board.
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Acknowledgements
We acknowledge the participants and study teams at Metropolitan Asian Family Services, Endeavor HealthSystem, Village of Skokie Health and Human Services, Skokie-Morton Grove District 69, and Northwestern University who contributed to the SAHELI trial. The authors are solely responsible for the design and conduct of this study, all study analyses, the drafting and editing of the paper and its final contents.
Funding
This study was supported by the National Heart, Lung, and Blood Institute (1R01HL132978, K24HL155897). Dr. Milkie Vu was supported by the National Institutes of Health (National Cancer Institute, T32CA193193 and National Center for Advancing Translational Sciences, KL2TR001424).
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MV was responsible for study conception, design of the work, acquisition, analysis and interpretation of data, and drafting and revision of the manuscript. SN and NL were responsible for the acquisition, analysis, and interpretation of data as well as the revision of the manuscript. BS and CHB were responsible for the interpretation of data and revision of the manuscript. NK was responsible for study conception, design of the work, interpretation of data, and revision of the manuscript.
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Research reported in this study was performed in accordance with the Declaration of Helsinki. The Northwestern University Institutional Review Board approved this study (STU00204939).
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Vu, M., Nedunchezhian, S., Lancki, N. et al. A mixed-methods, theory-driven assessment of the sustainability of a multi-sectoral preventive intervention for South Asian Americans at risk for cardiovascular disease. Implement Sci Commun 5, 89 (2024). https://doiorg.publicaciones.saludcastillayleon.es/10.1186/s43058-024-00626-4
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DOI: https://doiorg.publicaciones.saludcastillayleon.es/10.1186/s43058-024-00626-4