- Research
- Open access
- Published:
Factors influencing evidence-based cardiovascular disease prevention programming in rural African American communities: a community-engaged concept mapping study
Implementation Science Communications volume 6, Article number: 11 (2025)
Abstract
Background
African Americans experience cardiovascular disease (CVD) disparities, and the burden is greatest in the rural south. Although evidence-based CVD prevention and management programs have been tailored to this context, implementation has been limited and not sustained long-term. To understand how to implement and sustain evidence-based CVD programs at scale, we must explore the perspectives of organizations serving rural African American communities and situate findings within foundational Implementation Science frameworks.
Methods
This study used group concept mapping (GCM) to elicit and synthesize stakeholder perspectives into an action-focused conceptual model depicting factors influencing implementation of evidence-based CVD programs. Representatives of community-based, faith, and healthcare organizations serving African Americans in five rural North Carolina counties were recruited via purposive sampling techniques. Participants (total n = 31) completed three activities: 1) brainstorming in response to an open-ended prompt (n = 31); 2) sorting brainstorm data into wider concepts and rating each in terms of relative importance and feasibility (n = 26); and 3) collaborative interpretation and refinement of the concept map (n = 19). Multivariate statistical analysis was used to generate a concept map. Absolute pattern matches comparing ratings of the relative importance and feasibility of each factor were generated and depicted via ladder graphs.
Results
The final concept map included five factors: Accessibility, Community and Social Factors, Education and Training, Financial/Resource Development, and Organization Capacity and Staffing. There was high agreement (r = .98) between ratings of importance and feasibility. Education and Training, both within organizations and the wider community, was rated as the most important and feasible factor and Financial/Resource Development was the least important and feasible.
Conclusions
The concept map emphasizes aspects of organizations (inner setting), their surrounding community (outer setting), and individual stakeholders (participants, implementers) as influencing implementation of evidence-based CVD prevention and management programs in rural African American communities. The nature of the intervention or implementation processes were de-emphasized. Organizations in rural African American communities may feel equipped to implement a range of evidence-based programs, provided strategies address the contextual and structural barriers that impede their success. Group concept mapping helped distill and prioritize initial leverage points for action in our project catchment area by facilitating a community-engaged process of data generation and interpretation.
Background
African Americans in the United States experience disproportionate cardiovascular disease (CVD) morbidity and mortality, and the burden is greatest in rural communities in the south [1]. CVD prevention and management programs (CVD EBPs) have been developed [2, 3] and there has been preliminary work to tailor and test their impacts among African Americans living in rural settings [4]. Despite their proven effectiveness, even tailored CVD EBPs are not widely or sustainably implemented [4]. There is a dearth of studies applying implementation science methods or frameworks to look at the specific determinants of CVD EBP implementation [5]. Additionally, failure to thoroughly examine and account for the unique implementation assets and challenges within rural African American communities compounds this evidence-to-practice problem [6]. Broadly, assets include a strong sense of community [6], robust institutions (e.g., faith communities) [7], and collective resilience to adversity [8]. While barriers include structural racism and its effects [9] involving a historical under-resourcing of human services and community infrastructure [9]. Each community and region are unique, however, and an in-depth understanding of the specific interplay of these factors is needed to develop actionable local implementation plans. Community-based participatory research (CBPR) approaches can help us develop this understanding. CBPR engages stakeholders as experts in meaning and decision making and is increasingly recognized as useful in bridging research-to-practice gaps, especially in historically marginalized communities whose perspectives and priorities are often underrepresented in research [10].
Group concept mapping (GCM), a participatory method for eliciting and synthesizing group perspectives, is a promising CBPR-aligned approach [11]. It is recognized as well suited for examining complex health issues in collaboration with communities, and over 100 such studies have been published [12]. In GCM, key stakeholders are engaged in cycles of data generation, synthesis, and review resulting in a concept map, a visual and mathematical representation of their shared understanding of an issue. There are several aspects of the concept mapping process that are thought to facilitate community engagement. First, stakeholders are directly involved in the generation and processing of the source data. Additionally, the output includes rich and visually organized quantitative and qualitative information that facilitates engagement from diverse audiences [13]. Finally, participants interpret the findings as a group, finalizing the concept map through shared sense making. Greater community engagement is thought to benefit both the research and the community, by improving the validity and utility of the findings [14].
This study uses a GCM approach to explore the question: What factors influence implementation of evidence-based CVD programs in rural African American communities? The work was grounded in and guided by CBPR principles [15], with the goal of generating community-centered insight to leverage assets and overcome barriers to implementing a CVD EBP named Heart Matters.
Methods
Setting
North Carolina (NC) is part of the nation’s ‘stroke belt’ — a region in the southeast with high rates of CVD. Eastern NC, which is predominantly rural with large African American populations, has some of the highest prevalence of CVD risk, morbidity, and mortality in the state [16]. In 2021, the University of North Carolina, Chapel Hill’s Center for Health Equity Research (UNC CHER) launched the Collaborate and Leverage Evidence in an African American Rural Network (Co-LEARN) study (R01HL157255, Corbie, Dave), which seeks to scale and test the effectiveness of Heart Matters, across five rural counties in eastern NC. Heart Matters is a 12-month behavioral change intervention targeting multiple CVD risk factors. Heart Matters consists of 26 group sessions and 7 individual visits. Its lifestyle goals include: 1) reducing weight by 15 lbs. or another agreed upon goal, 2) limiting fat intake by consuming 20–50% or less of total calories from fat, 3) limiting daily sodium intake to 2300 mg or less, 4) accumulating 150 min of moderate-intensity exercise each week, 5) limiting alcohol intake; women are advised to consume no more than one alcoholic drink per day and men are advised to consume no more than two alcoholic drinks per day, and 6) diet and physical activity tracking [16]. Heart Matters has demonstrated effectiveness in key near-term outcomes, including promoting healthy eating, physical activity, and family support for lifestyle change, critical behavioral and psychosocial predictors of hypertension control [17]. The Heart Matters program had been previously adapted from PREMIER, an evidence-based CVD treatment program, and tailored to our study catchment area in partnership with Project GRACE, an 18-year community-academic partnership in the region [16]. The Co-LEARN study aimed to build on this foundation by developing and testing a durable local infrastructure for program implementation that tapped the potential of trusted organizations within African American communities. Using GCM to understand, from the perspective of these key stakeholders, the contextual landscape influencing Heart Matters scalability and sustainability was a key first step. The core GCM research team (hereafter referred to as the research team) included academic partners, community partners, and methodological experts. Specifically, academic partners were faculty and staff of UNC CHER. Community partners were members of Project GRACE, representing community-, clinic-, and faith-based organizations/sectors, including a full-time coordinator who was from and resided in the study catchment area. Methodological experts were researchers from Concept Systems, Inc., the progenitors of the GCM methodology and leading experts on its application. The wider Project GRACE steering committee provided regular guidance to the initiative.
Sample and recruitment
Recruitment activities occurred between June and November 2022. The research team designed sampling and recruitment methods through a series of collaborative meetings. Plans and materials were shared with the Project GRACE Steering Committee during monthly meetings to solicit feedback and allow the team to respond proactively to comments or concerns. Recruitment used a mixed purposive and convenience sampling approach that engaged community partners as trusted messengers, in line with best practices for recruiting groups who are frequently underrepresented in research [18,19,20].
We aimed to recruit one representative per organization. Organizations were eligible to participate if they were: 1) community-based organizations providing services related to CVD or its social risk factors (e.g., emergency food assistance, housing rental assistance); healthcare organizations providing or overseeing clinical care (e.g., hospitals, public health agencies); or faith-based organizations; 2) located in the study catchment area (focused on five rural counties but inclusive of neighboring counties with comparable rurality and socioeconomic profiles), and 3) served African American adults. We asked eligible organizations to identify a representative with sufficient historical and content knowledge to participate.
We used a multi-step process to identify eligible organizations with the goal of achieving even representation across sectors and counties. First, we referenced a comprehensive list of organizations that had been compiled during the exploratory planning phase. To update and augment this list, community partners added any potentially eligible organizations within their professional networks. Then, we shared the list with the Project GRACE steering committee, soliciting input on organizations that were missing or could be removed (e.g., due to closure), and suggested points of contact. Lastly, we conducted a final round of targeted outreach to community, government (e.g., health departments), and academic partners working in the area, and used confirmatory internet searches to finalize the list.
Community partners made initial outreach attempts to organizations within their respective sectors via phone and email. If initial attempts were not successful, then community partners attempted to contact them a second time at least two days later. After three unsuccessful attempts, organizations were not contacted further. If organizations indicated interest in participating in the study or wanted additional information, they were connected to the local field coordinator, who reviewed study details, confirmed eligibility, and addressed any questions or concerns with participants. They were asked to identify a back-up within their organization to complete activities if they were not able to do so, although the goal was to have the same representative complete all three activities, and incentives were provided at the organizational level (i.e., $50 for brainstorming, $50 for sorting and rating, and $75 for group interpretation). Finally, participants were asked to help identify any organizations that may be eligible and interested in this research study and provide their contact information to, or put the organization in contact with, the project coordinator. The snowball sampling approach [17] helped augment the list-based purposive sample.
Group concept mapping process
Brainstorming
The first activity, brainstorming, involves soliciting group input in response to a focus prompt. In our study, enrolled participants were invited to complete brainstorming asynchronously and virtually using the groupwisdom platform [21], to reduce participation barriers related to scheduling, transportation, or COVID-19 safety concerns. They received instructions for accessing the platform using an anonymous login and were encouraged to complete the ~ 30–60-min activity in one sitting, although they could return as many times as needed while the activity was open (October-December 2022). After logging in and providing informed consent, they were asked to complete a brief 8-item structured questionnaire collecting information on their role in their organization and organizational characteristics, including size, service area, and sector (e.g., healthcare-, faith-, or community-based). They were also asked to describe the type of CVD-related services they offer and the length of their experience offering these services. Questions were developed by the research team and/or adapted from prior instruments utilized by the academic partners in comparable GCM studies.
Next, participants were asked to respond to a single focus prompt: ‘What are the factors that can affect the delivery of a high-quality heart disease prevention program by your organization in your community?’ and provided with the reference text:
As a reminder, high-quality heart disease prevention programs help participants lower their risk in multiple ways including eating less salt and fat, moving more, limiting alcohol, and losing weight. Programs use interactive individual and group sessions to help participants learn new information, build new skills, and set and track their goals over a year-long period. Sessions are led by community members trained to deliver the program, such as teachers, coaches, and clergy members, and health professionals, like nutritionists, nurses, and personal trainers.
The research team, inclusive of community partners and researchers at Concept Systems Inc., developed the focus prompt and reference text to address our unique research goals. The team included a general description of the program model, versus a more specific description of the Heart Matters program, for several reasons. First, a goal of the Co-LEARN initiative was to collaboratively refine the HeartMatters program, through concept mapping and related participatory planning activities. As such, the exact details of the program and implementation model weren’t known at the time we conducted the study. Additionally, there was concern that respondents would struggle to engage with long or overly technical implementation details. Community partners involved in the development and feasibility trial of the Heart Matters program helped to develop the general program description in the focus prompt, ensuring it was accurate and would be clearly understood by the intended participants. Instructions in the platform encouraged participants to respond to the prompt by typing a statement that answers the focus prompt, with each statement representing one unique idea. There was no limit to the number of statements participants could submit.
After six weeks and three reminders to those who had not yet logged into the platform, we closed the brainstorming activity. To prepare the statements for sorting and rating, first, we took the full statement list and cleaned it by combining overlapping or repeating statements, removing particularly unclear or partial responses, and grouping the resulting unique statements into seven larger categories. Next, we reviewed and made minor edits to statements to relate them more clearly to the focus prompt, as needed. For instance, we edited "Women need to be educated on heart disease" to "lack of education for women focused on their experience of heart disease".
Sorting and rating
In the second activity, participants worked with the cleaned statement list, grouping the statements into wider concepts, and then rating the concepts in terms of importance and feasibility. They were encouraged to log into the platform anonymously, view the final statement list, and then sort them into groups with similar meanings. They were asked to give each group a thematic name based on the contents of the statements. Participants were allowed to create as many groups as they needed and could make edits as needed. Once sorted, they were asked to rate each statement based on importance and feasibility with two prompts: ‘We’d like to know how important you think each idea is to the delivery of high-quality programs, in comparison to other ideas in the list’ and ‘Please also tell us how feasible you think each idea is to address, compared to other ideas in the list.’ Response options used a four-point Likert structure ranging from ‘not at all important/feasible (1)’ to ‘very important/feasible (4)’.
Multivariate statistical analysis
We conducted multivariate statistical analysis within the groupwisdom software program (Concept Systems, Inc, Ithaca, NY). First, we arranged data in a total similarity matrix which tallies the number of times two statements are sorted together, indicating their conceptual closeness. Then, we used multidimensional scaling to create a point map, which visually depicts the spatial distribution of the statements generated during brainstorming. The closer points are to each other, the more frequently the corresponding statements were sorted together by participants, and the stronger their conceptual relationship. During this analytic process, the software program iterates point maps until it converges on a version with the lowest possible stress value, between 0 and 1. A higher stress value represents more variability in how participants grouped statements, making it more difficult to ‘fit’ a singular visual depiction to the data.
Next, we conducted hierarchical cluster analysis to describe secondary structures, i.e., discreet clusters, within the data based on the location of the points on the map. There is no mathematical criterion for defining clusters, rather research teams explore various cluster solutions and decide on the most parsimonious structure to describe the configuration. We reviewed several solutions and finalized the optimal one during the collaborative interpretation activity (described below). Finally, we generated absolute pattern matches to compare clusters in terms of participant ratings, looking across multiple scales (i.e., perceived importance versus feasibility for all participants). We produced ladder graphs visually depicting pattern matches, including the ordinal relationships among clusters and the range of rating values across scales. We generated correlation coefficients for each pattern match to assess the ordinal similarity between the scales being compared (e.g., the extent to which the cluster rated as the most important was also rated as the most feasible).
Collaborative interpretation
In the final activity, we invited participants to interpretation sessions focused on confirming or modifying the group’s initial conceptual model, as represented by point and cluster maps (based on sorting data), and pattern matches (based on rating data). Four interpretation sessions were held in late March. All sessions were held virtually and both daytime and evening options were provided, considering accessibility and ongoing pandemic related safety concerns. Each session lasted for approximately one hour and was facilitated by the community field coordinator who led recruitment for all prior activities. Community partners within the research team were involved in developing the materials we reviewed in the sessions to ensure the information and messages would be acceptable to the audience. The field coordinator walked attendees through a summary of the concept mapping methods and the main results, and responded to open ended prompts designed to surface reactions and elicit feedback (e.g., What does the group think about these findings? What, if anything, is surprising about these results?). She reminded attendees there were no right, or wrong, answers and their feedback was important for finalizing the results. We transcribed sessions verbatim using the built-in functionality of the video conferencing platform, with de-identified transcriptions referenced in developing results, as needed.
Results
Thirty-one participants completed brainstorming. There was attrition after each activity, with 26 of the original sample completing some or all the sorting and rating tasks, and 19 taking part in the interpretation sessions. No new participants were added over time. Table 1 presents characteristics of organizations, and their representatives, that provided data in the Brainstorming phase. Participants most frequently reported offering services in Nash (32%) and Edgecombe (26%) counties, with less presence in the other counties (Franklin, Vance, Warren). Approximately half of participants (48%) represented faith-based organizations and a third (35%) represented community-based organizations; healthcare organizations were the least represented (13%). The vast majority (89%) reported offering at least one service or support related to CVD, with close to half offering these services for longer than five years. The most reported service was education programs, offered by just under half of participating organizations, followed by external referrals to CVD services/supports and navigation assistance. On average, participants had long tenures at their organizations (~ 16 years), with over half (58%) serving in senior management or supervisory roles (Table 1).
Generated statements and clusters
Participants contributed 86 statements during brainstorming. The cleaning process yielded a final set of 66 unique statements.
Cluster map
Multidimensional Scaling analysis of the similarity matrix converged after 16 iterations, resulting in a final stress value of 0.28, indicating a good fit to the underlying data (mean stress value across 69 published GCM studies = 0.28 [Rosas & Kane, 2012]). Figure 1 shows the cluster map depicting how participants arranged the 66 unique brainstorming statements. Brainstorming statements, by cluster are available in the Appendix. Hierarchical cluster analysis of this distribution yielded five distinct clusters, or factors: Accessibility, Community and Social Factors, Education and Training, Financial/Resource Development, and Organization Capacity and Staffing. Interpretation sessions confirmed results, no modifications were made following these discussions. Ideas in the Accessibility cluster comprised access to healthy and affordable food, walkable environments, transportation, and community services. Ideas in the Community and Social Factors cluster comprised community support and commitment of individuals and organizations in the community to CVD EBPs, as well as digital literacy and Internet access. Education and Training ideas spanned education and conceptions of heart disease in the community and training for program implementers. Financial/Resource Development ideas pertained to financial barriers and funding for programs directly or indirectly related to heart disease. Finally, ideas in the Organization Capacity and Staffing cluster dealt with adequate staffing and trained community members in appropriate organizations.
Pattern matches
Figure 2 depicts comparisons of cluster ratings (represented by the colored points) across importance and feasibility scales (represented by the vertical lines). Ratings of importance and feasibility were highly correlated (r = 0.98) for all clusters; factors seen as the most important for promoting implementation of high-quality heart disease prevention programming were also seen as the most feasible (See Fig. 2). Education and Training was rated as both the most important and the most feasible factor to address, Financial/Resource Development was rated as the least important and least feasible. The range of rating values on the importance scale (2.87–3.91) was narrower than the feasibility scale (2.46–3.44). While all clusters received higher importance than feasibility ratings, clusters with particularly large differentials between perceived importance and feasibility, shown via the colored lines, highlight factors that could be deprioritized in planning decisions; the steeper the line, the less agreement there is between the perceived importance and perceived feasibility of that factor. For instance, the red line (Accessibility) and dark green line (Financial/Resource Development), are relatively steeper than the orange line (Education and Training).
Discussion
Our study distilled five key influences on the implementation of high-quality CVD EBPs in a rural, predominantly African American region: education and training, community and social factors, organization capacity and staffing, accessibility, and financial resource development. Overlaying this conceptual model with Implementation Science frameworks, specifically the Consolidated Framework for Implementation Research (CFIR), we see an emphasis on organizational contexts, including the inner setting (Organizational Capacity and Staffing; Financial and Resource Development), outer setting (Community and Social Factors, Accessibility), and participating and implementing individuals (Education and Training), and a deemphasis on aspects of the innovation itself (e.g., the complexity, source, or design of the intervention) or the implementation processes (e.g., use of data). This emphasis on contextual factors, present even at the item level (see Appendix), is perhaps not surprising given the entrenched structural dynamics underlying CVD disparities in our study region. For instance, organizations in rural African American communities are often less resourced [22] and less networked as a partial function of being more geographically dispersed [23], making it harder to cultivate a sufficient talent pool or leverage funding. As noted by participants, individuals in rural communities face unique community and social barriers, like limited Internet access, that hamper their engagement [24]. It is worth noting that our sample was skewed towards representatives in management or administrative roles versus frontline staff potentially more involved in intervention development or day-to-day implementation. Even so, findings suggests that organizations in this context may feel equipped to implement a range of EBPs, if we can begin to grapple with the structural barriers that impede their success.
The concept map resulting from our study represents a cohesive model that highlights very clear leverage points for action, making it unique among published GCM studies [25]. Across the board, factors rated as the most important were also seen as the most feasible, starting with Education and Training. Respondents felt it was more important than feasible to tackle every factor, but the difference was particularly pronounced for Accessibility, i.e., community conditions that either support or inhibit lifestyle change, and Financial and Resource Development, i.e., funding to offset costs of implementation and participation. Thus, focusing on training and educating stakeholders seems like a clear first step in this region, and one likely to also build commitment and support for CVD EBPs (the focus of Community and Social Factors cluster which was rated as the second most important and feasible leverage point). Our findings suggest multi-level strategies to build knowledge and buy-in in the wider community and among organizational staff are warranted. However, systems thinking tells us that the five factors in our map are likely not independent of each other and should not be addressed in isolation [26]. For instance, as part of a training around CVD EBP implementation, organizations could explore how accessibility and resource development intersect to influence program success. Alternately, planners could consider how public education efforts, with the potential to increase demand for EBPs, could be timed so as not to overwhelm existing program resources. The concept map and ratings information collected here provides a solid foundation from which to explore these interdependencies (e.g., causal relationships, feedback loops) to inform a more holistic action plan.
This study addresses an important evidence gap around how best to support African American-serving organizations in rural areas to implement and sustain CVD EBPs. Critically, however, it also provides insights which are locally meaningful and actionable, as they emerged from a participatory, community-engaged process. These insights inform the next steps for our implementation strategy under the Co-LEARN study. A cornerstone will be convening organizations interested in offering the Heart Matters EBP in a Learning Collaborative to address areas highlighted in the concept map. For instance, participants can share promising practices and collaborate to develop community and organizational education and training resources. To complement and extend the concept mapping data, Learning Collaborative members will next explore connections and causal pathways in the map and ultimately home in on a detailed implementation blueprint [27]. Other practitioners can build on this example to develop community- and data-grounded planning projects to address complex health equity challenges in their areas.
Despite its strengths, this study has several limitations. To maximize participation among our small sample pool, and given ongoing pandemic-related safety concerns, all activities were conducted virtually and brainstorming and sorting and rating were conducted asynchronously. It was not possible to clarify or confirm our understanding of brainstorming ideas. Although we used sampling and recruitment techniques that have been shown to increase engagement among groups not typically represented in research [17], we encountered difficulty reaching organizations in the wake of the COVID-19 pandemic. Many had closed, experienced staff turnover, or had out-of-date contact information, fracturing the networks we hoped to leverage in recruitment. Nevertheless, our sample is over the minimum threshold (10) considered necessary to produce a valid concept map [28]. Exploring differences across sub-groups in our sample, including clinic-, community-, and faith-based organizations was beyond the scope of this analysis, and was complicated by the lower than desired sample size. As sectors differ significantly in their structure and resource landscapes, disaggregating results could have provided additional or different insight and represents a key next step for future research. Furthermore, we collected data at the organizational level and participating organizations were asked to self-identify a representative to complete activities on behalf of their organization. Including different representatives (e.g., with more/less/different experience) within a given organization could have yielded different perspectives. Unfortunately, validated measures were not available for constructs of interest. Although we used the CFIR to structure our research goals and reporting, better integrating it into the design of all GCM activities could have improved the validity and interpretability of findings. We balanced this consideration against the risk of alienating community participants and partners by emphasizing technical research frameworks, as well as the potential to increase time burden given challenges with recruitment. The high correlation between importance and feasibility ratings raises concerns these scales are not independent. However, a core goal of the concept mapping methodology is supporting action planning through comparison of rating scales (i.e., via GoZone matrices). The scales used in this study have been used in a robust body of concept mapping literature involving these comparisons and similar concerns around scale independence have not been previously documented [25]. Results are intended to inform local planning and are, by nature, highly contextualized within the study catchment area, so they may not generalize to other samples or contexts. While a goal of the study was to generate insight unique to rural areas, addressing a critical knowledge gap, having an urban comparator would further clarify the aspects of our results that are specific to a rural context. Some, but not all, respondents had familiarity with the EBP being considered for scale-up under this initiative, and the focus prompt provided a general overview of the key features of the program model, without specific implementation details. It is possible the deemphasis around aspects of the innovation or implementation processes are tied to this incomplete understanding. We used a modified version of the Conducting and REporting DElphi Studies (CREDES) standards [29] to guide development of this manuscript. There are presently no reporting standards for group concept mapping methodology; the Delphi method was deemed to be the closest approximation.
Conclusions
The findings from this concept mapping study can inform how best to support organizations serving African Americans in rural areas to implement and sustain CVD EBPs, a novel contribution with important implications for the reduction of disparities in CVD morbidity and mortality. Stakeholder organizations identified five factors influencing implementation of CVD EBPs in their communities: Education and Training, Community and Social Factors, Organization Capacity and Staffing, Accessibility, and Financial/Resource Development. Characteristics of the intervention or implementation processes, predictors of implementation success in prevalent models such as CFIR, were not emphasized in this study. In historically marginalized rural communities, there may be a relative need to address structural barriers both inside and outside of the organization to ensure environments are conducive to implementation. Group concept mapping helped our group distill and prioritize action steps in an emerging implementation plan by facilitating a collaborative, community-driven process of data generation and interpretation.
Data availability
The datasets analyzed by this study are available from the corresponding author upon request.
Abbreviations
- CVD:
-
Cardiovascular disease
- CVD EBPs:
-
Evidence-based CVD prevention and management programs
- CBPR:
-
Community-based participatory research
- GCM:
-
Group concept mapping
- NC:
-
North Carolina
- UNC CHER:
-
University of North Carolina, Chapel Hill’s Center for Health Equity Research
- Co-LEARN:
-
Collaborate and Leverage Evidence in an African American Rural Network
- CFIR:
-
Consolidated Framework for Implementation Research
- EBP:
-
Evidence-based program
References
Mazimba S, Peterson PN. JAHA Spotlight on Racial and Ethnic Disparities in Cardiovascular Disease. J Am Heart Assoc. 2021;10(17):e023650.
Ebrahim S, Taylor F, Ward K, Beswick A, Burke M, Davey Smith G. Multiple risk factor interventions for primary prevention of coronary heart disease. Cochrane DatabaseSyst Rev. 2011;19:CD001561.
Appel LJ, Champagne CM, Harsha DW, Cooper LS, Obarzanek E, Elmer PJ, Stevens VJ, Vollmer WM, Lin PH, Svetkey LP, Stedman SW, Young DR. Writing Group of the PREMIER Collaborative Research Group. Effects of comprehensive lifestyle modification on blood pressure control: main results of the PREMIER clinical trial. JAMA. 2003;289(16):2083–93. https://doiorg.publicaciones.saludcastillayleon.es/10.1001/jama.289.16.2083.
Bess KD, Frerichs L, Young T, Corbie-Smith G, Dave G, Davis K, et al. Adaptation of an Evidence-Based Cardiovascular Health Intervention for Rural African Americans in the Southeast. Prog Community Health Partnersh. 2019;13(4):385–96.
Hassen HY, Ndejjo R, Van Geertruyden JP, Musinguzi G, Abrams S, Bastiaens H. Type and effectiveness of community-based interventions in improving knowledge related to cardiovascular diseases and risk factors: A systematic review. Am J Prev Cardiol. 2022;10:100341. Accessed 7 Dec 2023. Available from: https://www.sciencedirect.com/science/article/pii/S2666667722000253.
Shelton RC, Adsul P, Oh A, Moise N, Griffith DM. Application of an antiracism lens in the field of implementation science (IS): Recommendations for reframing implementation research with a focus on justice and racial equity. Implement Res Pract. 2021;2:263348952110494.
McRae MB, Carey PM, Anderson-Scott R. Black Churches as Therapeutic Systems: A Group Process Perspective. Health Educ Behav. 1998;25(6):778–89.
Noonan AS, Velasco-Mondragon HE, Wagner FA. Improving the health of African Americans in the USA: an overdue opportunity for social justice. Public Health Rev. 2017;37(1). Accessed 7 Dec 2023. Available from: https://biomedcentral-publichealthreviews.publicaciones.saludcastillayleon.es/articles/10.1186/s40985-016-0025-4.
Yearby R, Clark B, Figueroa JF. Structural racism in historical and modern US health care policy. Health Affairs. 2022;41(2):187–94. Accessed 7 Dec 2023. Available from: https://www.healthaffairs.org/doi/10.1377/hlthaff.2021.01466.
Fleming PJ, Stone LC, Creary MS, Greene-Moton E, Israel BA, Key KD, et al. Antiracism and Community-Based Participatory Research: Synergies, Challenges, and Opportunities. Am J Public Health. 2023;113(1):70–8.
Rosas SR. Group concept mapping methodology: toward an epistemology of group conceptualization, complexity, and emergence. Qual Quant. 2016;51(3):1403–16.
Vaughn LM, Jones JR, Booth E, Burke JG. Concept mapping methodology and community-engaged research: A perfect pairing. Eval Program Plann. 2017;60:229–37.
Ågerfalk PJ. Embracing diversity through mixed methods research. Eur J Inf Syst. 2013;22(3):251–6.
Wallerstein N, Duran B. Community-Based Participatory Research Contributions to Intervention Research: The Intersection of Science and Practice to Improve Health Equity. Am J Public Health. 2010;100(S1):S40-6. Accessed 7 Dec 2023. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2837458/.
Balls-Berry JE, Acosta-Pérez E. The Use of Community Engaged Research Principles to Improve Health: Community Academic Partnerships for Research. P R Health Sci J. 2017;36(2):84–5. Accessed 7 Dec 2023. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5582944/.
Corbie-Smith G, Wiley-Cene C, Bess K, Young T, Dave G, Ellis K, et al. Heart Matters: a study protocol for a community based randomized trial aimed at reducing cardiovascular risk in a rural, African American community. BMC Public Health. 2018;18(1):938.
Frerichs L, Bess K, Young TL, et al. A Cluster Randomized Trial of a Community-Based Intervention Among African-American Adults: Effects on Dietary and Physical Activity Outcomes. Prev Sci. 2020;21:344–54.
Perez DF, Nie JX, Ardern CI, Radhu N, Ritvo P. Impact of Participant Incentives and Direct and Snowball Sampling on Survey Response Rate in an Ethnically Diverse Community: Results from a Pilot Study of Physical Activity and the Built Environment. J Immigr Minor Health. 2011;15(1):207–14.
Kahan D, Al-Tamimi A. Strategies for Recruiting Middle Eastern-American Young Adults for Physical Activity Research: A Case of Snowballs and Salaam. J Immigr Minor Health. 2008;11(5):380–90.
Hughes AO, Fenton S, Hine CE. Strategies for sampling black and ethnic minority populations. J Public Health. 1995;17(2):187–92.
The Concept System® groupwisdomTM (Build 2022.30.10) [Web-based Platform]. groupwisdom. 2022. Accessed 7 Dec 2023. Available from: https://groupwisdom.tech.
Jiménez DJ, Sabo S, Remiker M, Smith M, Samarron Longorio AE, Williamson HJ, et al. A multisectoral approach to advance health equity in rural northern Arizona: county-level leaders’ perspectives on health equity. BMC Public Health. 2022;22(1):960.
Galloway AP, Henry M. Relationships between Social Connectedness and Spirituality and Depression and Perceived Health Status of Rural Residents. Online J Rural Nurs Health Care. 2014;14(2):43–79.
King H, Martin M, McArdle S, Goldberg R, DeSalvo B. United States Census Bureau. Mapping Digital Equity in Every State. 2022. Accessed 20 Dec 2024. Available from: https://www.census.gov/library/stories/2022/05/mapping-digital-equity-in-every-state.html.
Rosas SR, Kane M. Quality and rigor of the concept mapping methodology: A pooled study analysis. Eval Program Plann. 2012;35(2):236–45.
Leischow SJ, Milstein B. Systems Thinking and Modeling for Public Health Practice. Am J Public Health. 2006;96(3):403–5. Accessed 7 Dec 2023. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1470500/.
Siokou C, Morgan R, Shiell A. Group model building: a participatory approach to understanding and acting on systems. Public Health Res Pract. 2014;25(1). Accessed 7 Dec 2023. Available from: https://www.phrp.com.au/issues/vol2512014/group-model-building-participatory-approach-understanding-acting-systems/.
Mazzucca S, Betit E, Bunting J, Tabak R. CPWR R2P Concept Mapping Report. 2019. Accessed 7 Dec 2023. Available from: https://www.cpwr.com/wp-content/uploads/publications/publications_RR2019-concept-mapping.pdf.
Junger S, Payne SA, Brine J, Radbruch L, Brearly SG. Guidance on Conducting and Reporting DELphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review. Palliat Med. 2017;31(8):684–706.
Acknowledgements
We gratefully acknowledge study participants who took their valuable time to participate in this study as well as Project GRACE for their input, support, and guidance.
Funding
This work was supported by a research grant from the National Institutes of Health, National Heart, Lung, and Blood Institute [R01HL157255, Corbie, Dave].
Author information
Authors and Affiliations
Contributions
AD’s contributions include conceptualization, methodology, data curation, original draft writing, review and editing, supervision, and project administration. BW’s contributions include conceptualization, methodology, formal analysis, data curation, original draft writing, reviewing, and editing, supervision, and project administration. MW’s contributions include conceptualization, original draft writing, reviewing, and editing, supervision, project administration, and funding acquisition. KB’s contributions include data curation, project administration, and original draft review and editing. SR’s contributions include methodology, formal analysis, software, data curation, original draft review and editing, and visualization. MWM’s contributions include original draft review and editing. BE’s and SM’s contributions include conceptualization, project administration, original draft review and editing. VR’s contributions include formal analysis and original draft review and editing. GC’s contributions include conceptualization, original draft review and editing, and funding acquisition. GD’s contributions include conceptualization, methodology, original draft reviewing and editing, supervision, project administration, and funding acquisition.
Corresponding author
Ethics declarations
Ethics approval and consent to participate
This study has been approved by the University of North Carolina, Chapel Hill’s Institutional Review Board (study number: R01HL157255-01).
Consent for publication
All study participants consented to participate in the research, including aggregation and dissemination of results.
Competing interests
The authors declare that they have no competing interests.
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Supplementary Information
43058_2024_692_MOESM1_ESM.docx
Additional file 1. CREDES Reporting Standards: Author Checklist. The file contains the author’s completed checklist reflecting adherence to modified version of the CREDES reporting standards.
Rights and permissions
Open Access This article is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if you modified the licensed material. You do not have permission under this licence to share adapted material derived from this article or parts of it. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc-nd/4.0/.
About this article
Cite this article
DeFosset, A., Deutsch-Williams, B., Wynn, M. et al. Factors influencing evidence-based cardiovascular disease prevention programming in rural African American communities: a community-engaged concept mapping study. Implement Sci Commun 6, 11 (2025). https://doiorg.publicaciones.saludcastillayleon.es/10.1186/s43058-024-00692-8
Received:
Accepted:
Published:
DOI: https://doiorg.publicaciones.saludcastillayleon.es/10.1186/s43058-024-00692-8